Monthly Archives

September 2012

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Criminal Charges

Well, today is off to a great start! After playing tag with the Seattle assistant district attorney, she let me know that the city is in fact going to press charges in my attack case!! Apparently, the city receives over 200 new cases a week, and they were very clear from the start that there is no guarantee that charges would be pressed. This case has bounced around a bit, within the system, and I’ve had to give my statement several times. Each time it was hard, sad, and stirred quite a bit of emotions. When I heard the news this morning, I thought I would be relieved, happy even, but instead I’m sad. The man who attacked me is married with four children. The oldest is 10 and the youngest is a set of infant twins. I did not intend to hurt his family, but in order to keep others safe I felt compelled to help the city press criminal charges. I know that this man has sexually accosted two other women, and he has become more and more aggressive. To attack a woman in her own home, working as her maintenance man, is incredibly brazen. This man should not be working in people’s homes. Anyway, I’m off to catch the bus for another counseling session. Alison is going to be THRILLED by this morning’s news!! Also, I included three photos from Saturday night. Throughout the night I was reminded of how wonderful our friends are. I am so glad that our buddy Eric got his job at the Blume Company, where he met Meghan who is married to Sean, who he then introduced to Dan, then Dan included me, and now Meghan and Sean have introduced us to all of THEIR friends, and Dan and I now have…

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What’s Bright & Has Dots All Over…

This is my second year donating a piece of art for my friend Meghan’s philanthropy’s art auction. The photo below is just a portion of the 30 inch x 30 inch canvas, which took over 60+ hours to create. I hope that it raises gobs of money for their fundraiser!!! I’m off to shower, and then off to the auction!!! Hope everyone has a wonderful evening! Community “Humans, like this piece, are full of color. They are constantly changing, shifting, growing, reaching. Even at our darkest points, we’re never far from connection, laughter, euphoria. Each person, each color, is stunning alone, but when they come together, when WE come together, each unique shade, hue, and tint become more vivid. We are all more beautiful, more alive, as a part of our community, our human family.”

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New Supplement Recommendations

Sorry it has taken me so long to give the update on the supplements that Dr Chang recommended. I’m going to break them down below: Lactoferrin (250mg 2xd) – Immune booster (read more here)EGCG (250mg 2xd) – Amazing antioxidant (read more here)Cloud Mushroom Extract (1500 mg 2xd) – Immune booster/cancer suppressor (read more here)Thymus (4 sprays 2xd) – Immune booster (read more here) Banerji Protocol  Calc Phos 9X (3 pills dissolved under tongue @ 10:00am, 4:00pm & 10:00pm) – (read more here)Ruta 6C (3 pills dissolved under tongue @ 7:00am, 1:00pm & 7:00pm) – (read more here) I recommend researching all the different supplements on your own if you’re interested in taking them. If you are concerned about quality, please check out Dr Chang’s website, all of them are available there, and I trust him.

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The Pleasure of Being Alive

I’m on hold with Jet Blue, figuring out flights. I still don’t know when I’ll be able to fly back home, but I’m paying for refundable tickets so it should all work out. I booked different flights for Dan already too, and that makes me really happy 🙂 Dan’s taking some time off for the surgery and recovery. It’s a huge relief that Dan will be with me. He makes me laugh, nurtures me, and puts me at ease. I don’t know if you guys remember, but after the last brain surgery, Dan would scoop me up and put me into a bubble bath. He would gently shave my legs and armpits. He coordinated over 80 pills daily, all of them falling at different intervals, even through the night. Dan did not sleep unless I slept, and even then he was so worried about me that he would be taking care of things around the house like food, or laundry, or just laying there softly cuddling me. I never thought I would be as lucky as I am. I never thought I could love someone this much. He’s the most gentle and kind human I have ever met. He’s amazing. This whole thing is crazy, but I’m becoming more and more ready, not only with the planning but also emotionally. This is an amazing opportunity. It’s the treatment that I wanted, with the best results. Originally, I was going to fly to Germany and do the same treatment. The only difference is that they were going to try and use my old tumor tissue, the one from 2.5 years ago. The problem is that the tumor tissue can morph. So, to have the best success rate you need the freshest tumor tissue. This clinical trial fell into my lap. It…

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Scalpel, Skin, Saw, Skull

I’ve been mentally running around like a crazy person trying to plan this trip to UCLA. I have six different appointments already scheduled. I just got off the phone a little bit ago where the gentleman said that they won’t schedule my post surgery pathology appointment because they will need to review the results and decide if they’re going to recommend further treatment, like chemotherapy or radiation. Once they have their recommendation (hopefully NOTHING), they will decide if I need an appointment with Dr Liau or a specialist. Fingers crossed for just Dr Liau! Of course, I can always opt out of those treatments, but it’s still a scary concept to acknowledge that the DNA of my tumor could have morphed into a higher grade. That’s a very scary thought, one that only swims around the periphery of my mind, a possibility but not my current reality. It’s important for me to not get caught up in the “what ifs.” And anyway, I feel great! So there. Can you believe I’m doing another brain surgery? It’s almost exactly 2.5 years after the first one. That seems very quick, and yet, an entire lifetime. They’re going to cut through my beautiful, unknowing, innocent little skull. They will use scalpels, a saw, and other tools. They will peal back my skin, pull off a portion of my skull. They will cut small nerves. They will dig around, separating the brain tissue and tumor. They will do all kinds of things, moving and removing things in the most intimate part of my body. They will be working on the area where my most inner thoughts and feelings, my genius and my ignorance are dancing. I speak of a brain surgery the way that most people discuss their grocery list, but here I am,…

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Post NYC Report

My college roommate Jess. It had been 10 years!! So much has changed, yet she’s still the sweet, sassy girl that I have so many incredible memories with. Aaaah, the ridiculousness of college. We shared a lifetime of laughter 🙂 Mom getting the hang of things The appointment went incredibly well. I highly respect Dr NYC. He seems to be the perfect fit. He reviewed my entire case, and was able to recommend a few more supplements (printing out research proving the effectiveness against gliomas/astrocytomas). I shared my plan with Dr NYC, and we discussed pros and cons of my options. Ultimately, we mutually decided that the best course of action is for me to do the clinical trial, and continue on all of my supplements. Dr NYC and I will be in contact, and I will end up heading to see him again after the brain surgery, once I am healthy enough to travel. After my appointment with Dr NYC, I immediately emailed Dr Liau to see if we could schedule the brain surgery. She responded within a couple of hours, and I now have the surgery on the books. My brain surgery will happen on October 18th, at UCLA. I’ll need to travel little over a week in advance in order to complete all of the necessary testing, and I’ll need to stay in LA for two weeks after the brain surgery to make sure that I’m healthy enough to travel. All-in-all it looks like I will be in Los Angeles for a month. Thank you to everyone who helped with the cherry fundraiser, for all of the donations, and the Crystal Seas Kayaking fundraiser. The money is going to be incredibly helpful! We’re looking for a rental in LA close to UCLA so that my parents can…

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Kayaking

My first bus ride since the attack. I’m on a roll!! Wandering around lower Queen Anne on my way to a girls only kayak trip Hunting for harbor seals Just after a paddle whack to Julia’s face. It was an accident, I swear! J & J conquer Lake Union I’m so glad I’m stubborn! I just have to get my frustration level high enough to get moving. Yesterday, I hopped on a bus, meandered down through lower Queen Anne, and met my buddy Jules down at Lake Union for some kayaking. I have become sick of living in fear of seizures or panic attacks. Now that I’ve gotten myself running again, and can easily hit the grocery store by myself, I have become much more confident and I’m pushing boundaries that I haven’t pushed in months. I’ve decided to get out and have as much fun as I can before the brain surgery. Jules and I even made a mental summer bucket list of fun activities to do. I’m so happy to be out doing things, conquering my fears, and laughing, enjoying the world around me. Life just keeps getting better and better!! 🙂 To Do (in no particular order):Hike Mount SiRent bikes and explore the Burke Gilman TrailStand up paddle board around Lake UnionRent one of the electric boats on Lake Union with a group of friends to watch the sunset We’d better get to work! 🙂

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Dr NYC

Ok. Mom & I are flying to New York for a doctor appointment on Tuesday. It’ll be a quick trip, just two days, then back home and I’m really excited! This is an exploratory appointment, and if it goes well, I might be going back on multiple occasions. This is exactly why my parents did the cherry fundraiser, so that I can go to the best doctors and get the most up-to-date treatment information. The doctor, Dr NYC, is all over the cancer community, pushing the boundaries of treatments. He’s a genius who is deeply respected in the cancer world (he also specializes in fertility for those who might be interested), and is on the cutting edge of cancer research. Not to mention the fact that he “currently directs the world’s largest database project on anti-cancer herbs,” according to the clinic website. According to my research, and my girlfriend who is a patient, he is incredibly open minded about alternative treatments, and at the same time he has the western medicine knowledge and experience so that he combines the best of both worlds. This is so great!! I have wanted to fly to New York to meet this man, and learn from him, but I haven’t had a great sense of direction. It’s always tough to make the final decisions in life, but luckily for me, this morning I received a sign! My girlfriend who is battling metastatic breast cancer mentioned Dr NYC, and I remembered us discussing how pleased she has been under his care. She was literally singing his praises when she found out I was curious about his reputation. This girl, or woman I should say, although I usually just call myself a girl – we’re the same age (more or less), is one of the most…

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