Monthly Archives

July 2013

Uncategorized

Relief

I woke on Saturday and continued to unpack, and as the minutes, then hours passed I became more and more anxious. It hit me like a ton of bricks that the MRI was a week ago. That’s a long time to not have results. In the past, UW had emailed me test results from their secure system, so I decided to log in and email the doctor’s office to see if they could send the report. I knew it was a Saturday, so I didn’t expect to get any response (other than an automated one) until the work week began, but bam within 10-15 minutes the report was in my account. It really improved my opinion of UW. I have had some bad experiences with the oncology department, but it’s nice to have positive experiences with other departments to wash away any negative feelings. So anyway, after Dan and I read the report, I posted it to the blog so that you can see for yourself. We feel incredibly relieved with the news. I feel like this MRI report is the best one yet. I’d love to see less flair/T2 signal, but for now I’m just thrilled to not have any nodular area/no tumor and no uptake of contrast dye.  It took several hours for the report to kick in, and I guess it still hasn’t. I’m kind of riding a wave of relief, and it feels fantastic. I even dreamt last night that I was sailing. 🙂 To celebrate the wonderful news, Dan wasn’t satisfied for me to just watch girlie movies cuddled in a blanket on the couch, so he stepped up his game and we grabbed some friends. Removing his bias against dancing, we went out and boogied! I am a ridiculous dancer, but a happy one. I’m…

Continue reading
Uncategorized

MRI Report (6/20/13)

Examination:MRI BRAIN WO/W CONTIndication:WHO grade 2 astrocytoma in the left parietal region, status post gross total resection. Comparison:Most recent MRI from April 20, 2013 Technique:Non-contrast Head: Axial T1, axial T2, axial diffusion. Post-contrast Head: 3D FLAIR (Sag, Ax, & Cor), axial diffusion. Axial, coronal& sagittal T1.Contrast:Contrast Agent Prohance 15 ml 07/20/2013 INTRAVENOUSFindings:Again identified stable changes related to left-sided craniotomy. The left parietal lobe resection cavity is unchanged in appearance since the prior exam. The prior described nonenlarged T2/FLAIR hyperintensities surrounding the medial and anterior aspect of the inferior part of the resection cavity (604/38 and 39) unchanged in appearance since the prior exam. Hypointense signal involving the medulla on T2 appear to be artifacts.Postcontrast imaging demonstrates linear enhancement in the surgical cavity underlying the craniotomy this is unchanged from the prior exam. No nodular enhancement in the surgical bed. Small DVA in right frontal lobe.There is no acute infarction. No mass effect no hydrocephalus. The major intracranial flow voids show expected appearance. Bilateral paranasal sinuses and mastoid air cells are clear. Bilateral orbits are normal. Impression:Compared to prior MRI from April 20, 2013, Stable appearance of resection cavity in the left parietal lobe with nodular T2/FLAIR hyperintensities along the anterior and medial aspect of the inferior part of the resection cavity. Continued followup is recommended.No acute intracranial process.

Continue reading
Uncategorized

More Cherries

Taking a break from packing, unpacking, and the joys of moving (it’s too hot for this…ugh), to share some news about another cherry run. Back by the graciousness (is that a word?) of Kings Market and Market Place in Friday Harbor, my dad and our buddy Ron delivered another batch of cherries, this time organic. So if you haven’t gotten your fill of sweet stuff, or know someone who wants to get regular…ahem….please feel free to purchase some delicious cherries to celebrate summer.  Dan, and my family, and I appreciate the support so much!

Continue reading
Uncategorized

Happily Developing

Inconvenient for moving, Dan has the keys to our old home. Conveniently, that forces me to walk Emma down to the lake for a swim. It is officially summer in the NW. It is and has been, hot (by Seattle standards). It’s gorgeous! Today came with a swelter first thing in the morning, pure sun. The dawn peaked her head with a beautiful haze of deep blues, graduating to the babies, then, bam, sun. It was so bright in the five o’clock hour that I wanted to get up and get to packing, but I haven’t been sleeping very well, so I adorned myself with my eye patches, and Bose noise canceling headphones. It’s a good look. Have I mentioned I’m a light sleeper? I had been enjoying the several days of fog rolling in and burning off midday, keeping things cool. It felt fresh, reminding me of gorgeous San Francisco (one of my faves). I had been meaning to walk over to UW to get my radiology report on Monday, but I’m scared. And it doesn’t sound fun. The report is usually available at the records department within 24 hours (according to the MRI tech). It’s a pain that I have to go get it myself, but oh well. We also mailed a hard copy of my scan to Dr L on Saturday. I figure I’ll hear the news when I hear the news. I’m not interested in doing radiation at this point anyway, and that’s the only thing my western doctors have to offer.  On another note, it’s a shame We had to move, if only for the fact that my garden is happily developing. Hope the next tenants love cucumbers…

Continue reading
Uncategorized

MRI Images

No obvious uptake of contrast dye. Nerve wracking morning. The T2 flair appears to have increased, and the definitions have expanded in a couple of directions, but all-in-all we feel like there’s no massively obvious area to panic about. We (Dan and I) are not trained in MRIs and don’t know what we’re doing, we just like to compare my brain scans so that we can visualize what’s happening in there.  I would not surprised if the report comes back with bad news; we never like seeing more on an MRI, which is our perspective on the images. But I will not worry too much until I read the report, or hear from Dr L. For now, I feel relieved that the tumor appears to still be low grade, and there is no clear nodular area (that us laymen can recognize). On a side note, my tumor area looks like a happy dog, panting…do you see it….it has hot breath coming out of the mouth. The image on the L is April’s MRI, and the R is today’s. On these images they look almost exactly the same, but with the large screens, it does appear that July’s scan is much brighter, and the lines may have expanded in areas. Guess we will have to wait and see. In the meantime, it’s another moving day, sweet!!!! I’m all about fun distractions. Onward and upward!

Continue reading
Uncategorized

New Home

Dan and I have been gloriously distracted by moving to our new home. It’s so exciting! We started looking for a rental, and had become quite disheartened. Seattle’s rental market is bloody, and vicious; it’s been hard vying for a home out of hordes of people.  Dan and I had been feeling the pressure of finances for quite a bit, and as people have been so generous with donations and by purchasing cherries, we have been anxious to find a tiny, safe, happy home where we can save money for shots and other medical needs.  So after feeling disheartened, and fearing we wouldn’t find a place for several months (and being rejected twice already), on Wednesday, after visiting Dan for lunch, I walked past my favorite home at Greenlake. Serendipitously, the front door was open and the place was empty. Mind you, I have been enamored with this little gem for two years, ever since we moved to Greenlake. I pass by it every time I head out for a walk. Anyway, there was no one around, but I had a good feeling about it so I sat down on the front steps with Emma. And sit we did. For just under two hours. Then the landlord arrived, and fabulously, fate had intervened. He brought doggie treats from his car for sweet Emma, and we hit it off immediately.  I wanted to sign on the spot, but the gentleman wouldn’t let me do it without at least showing it to my husband. I giggled and said, “Oh, you’re right. But I just know he’ll love it – we’ve talked about it many times.” And you know what, it turns out I was right. We received the keys the very next morning, and have been cleaning, and moving (little by little)….

Continue reading
Uncategorized

Dreams Shreams

Good morning! I’ve been distracting myself before the MRI with friends and walking. Yesterday I walked to Dan’s work for lunch, finding a cool new path… Of course, even with my best efforts at distraction, I had a nightmare last night that I had a 2 cm tumor. I’m not a dream whisperer, but maybe it’s one of those reverse reality things where the opposite is true? That’s what I’m going to decide to believe.  I have been having such an amazing summer, and as corny as it sounds, I’m happy each day, waking up excited about my life, my friends and family, my little garden, our sweet Emma and baby Bingie.  I haven’t been researching as much, instead taking time to live my life, and enjoy myself. If the scan is bad, I’m sure I’ll nose back into the research, but I have to say that these past few weeks have been such a treat!!  I just feel so fortunate, so blessed, and incredibly grateful for my life. I don’t know how I got so lucky! 

Continue reading
Uncategorized

Thank you!!!

I keep getting more and more texts and emails about the cherries, how delicious they are, and it makes me giddy. Dan and I feel so loved! I should have asked, if people felt like it, to shoot over a photo of them with their cherries. The anecdotes have been hilarious, and kind, and just everything that life, and friendships are all about. I can’t believe how lucky we are. Life is just wonderful. I know I sound ridiculous, annoying even. Maybe even insincere? But from where I’m sitting, I have nothing but gratitude in my heart. I know it won’t always be that way, how could it? Or could it. I don’t know. I’m not sure what life’s about. Where life will take us, how bad it could get, I have no answers. The only thing I have is each moment, each friend, each laugh and kiss with Dan, each hug with family, and it completely makes my life full of joy. Disclaimer: I do get cranky, and such, but with such an amazing life there isn’t much to complain about. I just feel so loved. Thanks guys.

Continue reading
Uncategorized

The Good Life

There’s nothing better than a Greenlake picnic. Dan is so great about seizing the moment. It was just the two of us, but with the blanket and picnic utensils, given to us from the Malones and Farraghers, it was as if we had a bunch of friends surrounding us 🙂  Life is good…

Continue reading
Close