Just snuck and took a video in my first neurosurgeon’s apppointmet at Swedish, in Seattle. At the end of the video you can see a slice of my brain, which includes the brain tumor. Yuuuuck!!! It’s gross. Every. Time. I. See. It. The image is from back in April, so it’s not even current.
On this Thursday, I have a MRI and cerebral fluid scan to evaluate the growth, and see how much blood is going to the tumor. The fluid scan tracks the metabolic activity which requires more blood than regular tissue.
Will meet with a new neurooncologist after the scan. Then I will upload my images to UCLA’s system and hope I get in for next Wednesday’s tumor board. It’s frustrating that they only review cases once a week. If there’s a backlog it can take weeks, even a month, to get results on treatment recommendations.
Big day today, but an even bigger one on Thurs. Fingers crossed that all of my little issues are treatment effects, not tumor growth. I believe in miracles. And in my opinion, it only takes one to change your life.