Tag

headache

Uncategorized

Back-To-Back Seizures (Kinda)

Well toots. I had another seizure on Saturday. That’s a fast turnaround since I just had a seizure a few weeks ago. Never a good sign. I was playing with my nephew, who had just finished his peewee football game. His older brother was suited up on the field. We were swinging on tree branches, between practicing touchdown dances, when all of a sudden I felt the seizure coming on. I looked at my eight year old nephew, who didn’t even know what a seizure was, and by the tone of my voice, he knew something was very wrong. I told him, with my bug eyes, to get Dan. I slowly followed, pulling pills out of my purse. There was so much excitement, the fans cheering for the players on the field, kids throwing balls, girls taking SnapChats with their friends, laughter, yells. There was nowhere quiet to go. I put a pill in my mouth and chewed it, hoping it would seep under my tongue and enter my blood system fast. Dan came to me, pulling off my coat since I had lost control of my torso. I always overheat when there’s seizure activity, so it’s important for me to get cool as soon as possible. He gently rocked me down to the ground, supporting my neck. He then ran to get water, and ice, and a few people started to ask if we needed the trainer, or a medical professional. I was able to tell them it was nothing to worry about, that I’m epileptic, and will be fine in a minute. A big fear of mine is being put in an ambulance, and being placed in the hospital, but we were able to avoid that issue. I don’t know what I would have done without Dan. As…

Continue reading
Uncategorized

Guest Blog Series – Lone Wolf

Several days ago, a girlfriend shared a brilliant idea with me. She said, “What about guest blog posts?” It came as a solution to share other people’s stories since I get sick of writing about me. You’d normally never hear about any of these folks because unlike me, there are people who fear repercussions from being honest about their diagnosis. And sadly, from the stories that I’ve heard, their often not wrong. Once we know something about a person, we can’t un-know it. And that becomes an issue regarding employment; our stories change how we are viewed.  You guys know me, I have no filter (or a very weak one), and I just speak. But there are times when I’ve regretted writing this blog. It’s rare, but it happens, and it’s because I know that the interwebs are eternal. If I apply for a job, there is no hiding my story. I can’t disguise what I’ve gone through, the deficits I deal with. For certain lines of work, it’s unappealing for employers to hire cancer patients, especially depending on the specific diagnosis, and prognosis. It’s just a fact. Anyway, I reached out to one of my tumor friends, one who is living in solitude with her diagnosis.  My goal in sharing these stories is several fold. I want patients to have an outlet, to express themselves anonymously. I want to give a voice to different stories so that people learn the dynamics of disease. I wish life was easier, that we could all share our truths openly, but if we can’t, at least we can have a format to do that here. I have no idea if there will be others who would be interested in sharing. I really hope there will be more patients, caregivers, family members, friends, etc….

Continue reading
Uncategorized

Urgent Jess Update

The email I sent to friends and family after the results of my scan:Friends & Family,Just wanted to send a quick note to let you know that I’ve had some extremely unexpected news. After an insanely intense debilitating headache that occurred last Friday while snowshoeing with Danny (and a couple of re-occurring headaches on Saturday and Sunday), I scheduled an appointment to meet with my doctor yesterday morning (Monday). I told her that I had such a bad headache that I couldn’t walk or see for about 90 seconds, and that the left side of my head, and lower back of my head, felt like they had a lot of pressure, and continued to have a pretty bad aching sensation. I pressured her to sneak me in for an MRI scan immediately, but there were some hoops regarding my insurance so we planned a CT for today. This morning I went in for my CT scan, at which time they said that I would instead be receiving an MRI (at which point I thought, “ooooh, UPGRADE!!”). Once in the room for the MRI they told me that I would not only be having an MRI but also an injection to see my brain even better (at which point I thought, “Cool! Double upgrade!!!”). After the procedure the radiologist looked at me funny and asked when my followup exam was (and I told her Friday), she told me that they would have my results shortly. I only got halfway home on my drive before I had a call from my doctor who told me that she had been on the horn with the neurosurgeon Dr Higgens and that I have a massive brain tumor and an AVM. I asked her if I was going to die, and her response, “We hope…

Continue reading
Uncategorized

No European Post Yet

I opened this account to chronicle my upcoming trip to Europe with dad. It’s odd that my first post is going to preface the trip with a freaking weird experience. So bare with me. Iceland, Sweden, Germany, the Netherlands, and best of all Poland, hang tight, we are just days away. (image added later) So, I’m heading in for my first MRI exam this morning. First scan of any time ever, actually. I had a severe instant onset debilitating – by which I mean unbearably painful (couldn’t see/talk/move for 90ish seconds) headache on Saturday, then again on Sunday. It hit my whole brain, then slipped to the left side, finally regressing to the upper back side of my head, where it remained throbbing for the following days. After Googling my symptoms, Danny, my mom, and I decided to schedule an appointment with a primary care physician to request a brain scan. (The internet said it was a good idea in order to rule out nefarious things like brain bleeds, stroke, brain tumors – you know, the fun stuff.) So, Monday I went down to the clinic and asked for the first doctor that would see me. While in that appointment, after describing my symptoms, the doctor argued with me. She said I did not have that painful of a headache, that people get migraines all the time. I told her it was more like a thunderclap headache. She said I was too young to have a thunderclap, it was physically improbable, even impossible. She tried to write me off, to send me home, but I wouldn’t give up. I respectfully told her that I wanted the scan. She complained that it would require a lot of paperwork and that I would have to wait at least a day to get…

Continue reading
Uncategorized

No European Post Yet

I opened this account to chronicle my upcoming trip to Europe with dad. It’s odd that my first post is going to preface the trip with a freaking weird experience. So bare with me. Iceland, Sweden, Germany, the Netherlands, and best of all Poland, hang tight, we are just days away. (image added later) So, I’m heading in for my first MRI exam this morning. First scan of any time ever, actually. I had a severe instant onset debilitating – by which I mean unbearably painful (couldn’t see/talk/move for 90ish seconds) headache on Saturday, then again on Sunday. It hit my whole brain, then slipped to the left side, finally regressing to the upper back side of my head, where it remained throbbing for the following days. After Googling my symptoms, Danny, my mom, and I decided to schedule an appointment with a primary care physician to request a brain scan. (The internet said it was a good idea in order to rule out nefarious things like brain bleeds, stroke, brain tumors – you know, the fun stuff.) So, Monday I went down to the clinic and asked for the first doctor that would see me. While in that appointment, after describing my symptoms, the doctor argued with me. She said I did not have that painful of a headache, that people get migraines all the time. I told her it was more like a thunderclap headache. She said I was too young to have a thunderclap, it was physically improbable, even impossible. She tried to write me off, to send me home, but I wouldn’t give up. I respectfully told her that I wanted the scan. She complained that it would require a lot of paperwork and that I would have to wait at least a day to get…

Continue reading
Close