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neurosurgery

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New Neurosurgeon, New MRI Scheduled

Just snuck and took a video in my first neurosurgeon’s apppointmet at Swedish, in Seattle. At the end of the video you can see a slice of my brain, which includes the brain tumor. Yuuuuck!!! It’s gross. Every. Time. I. See. It. The image is from back in April, so it’s not even current. On this Thursday, I have a MRI and cerebral fluid scan to evaluate the growth, and see how much blood is going to the tumor. The fluid scan tracks the metabolic activity which requires more blood than regular tissue. Will meet with a new neurooncologist after the scan. Then I will upload my images to UCLA’s system and hope I get in for next Wednesday’s tumor board. It’s frustrating that they only review cases once a week. If there’s a backlog it can take weeks, even a month, to get results on treatment recommendations. Big day today, but an even bigger one on Thurs. Fingers crossed that all of my little issues are treatment effects, not tumor growth. I believe in miracles. And in my opinion, it only takes one to change your life.

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Craniotomy, Not That Bad

I’m still sitting here playing the waiting game, which has its ups and downs. On the bright side, I get to spend the weekend with family and friends relaxing, and contemplating what a killer life I have (no pun intended). On the down side I just want them to saw open my head and dig this puppy out so that I can start recuperating. With all the extra time on my hands I decided to start a fun new game… Craniotomy, Not That Bad #1. I have a very close friend whose son was born with Congenital Scoliosis. He’s now almost four years old. His case is so severe that in the next 6 months to a year he will begin a series of surgeries on his spine that will occur every 6 months until he’s around 16 years old. In the initial surgery he will have a rod placed at his spine, and then with every reoccurring surgery they will slightly extend the length of the rod until he’s done growing. This poor little blond fella that looks like he fell off the Jerry Maquire movie case has no idea what’s in store for him. His process is going to take over a decade just of surgery, let alone all of the other complications. Therefore, Craniotomy, not that bad. #2. Another friend, Heather, has a daughter (Hayden) who survived a dresser and television falling on her skull. She was taken to the neurosurgery dept at Harborview Medical Center where a team of doctors had to brace her head, and do surgery by braille to locate a pea sized place in the dead center of Hayden’s brain to relieve pressure so that she didn’t die. Craniotomy, not that bad, #3. My uncle Michael (not really an uncle, but one of…

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